Lung Diseases: I Have a Lung Disease Called Bronchiectasis, They Have Tried Most Everything to Help Me Breathe

Question by Goodbye: Lung diseases: I have a lung disease called Bronchiectasis, they have tried most everything to help me breathe
But, to no avail nothing seems to be working. Anyone know of anyone that has this and if so, what treatments seem to work. I am 35 and they say i won’t live to see 40.

http://www.nlm.nih.gov/medlineplus/ency/article/000144.htm

Best answer:

Answer by maddee4c
I was not very familiar with this disease so I did some research. Is the type you have cystic bronchiectasis. If it is, according to the source I used, it is the only one whose effects are irreversible.Yet it said nothing about shortening your life span that much. How long have you had the disease? Was it a result of having pneumonia or tuberculosis? According to this source there are medicines to get rid of your excess mucous and exercises you can do to help the process. I would suggest contacting the American Lung Association. I hope they are able to help

Answer by kdjca3367
Bronchiectasis is less a disease than a component of several diseases. It just means dilated large airways (Ectatic Bronchi). I see cases of bronchiectasis in patients with various problems:
1) Cystic fibrosis – Can be diagnosed by sweat test.
2) Ciliary abnormalities – Can be diagnosed by electron microscopy of respiratory cells – or direct visualization of respiratory cells.
3) Upstream changes in small airway scarring (constrictive bronchiolitis) – Diagnosed by pulmonary function tests and lung biopsy.

We have transplanted several people with these diseases. Lung transplant is not easy, but it would allow you to see 40 in most cases.

I would start by finding out why you have bronchiectasis. Find a good pulmonologist at a large medical center that does evaluations for transplant if you think that may be required down the line.

There are various therapies you can do to keep the lungs as healthy as possible (read “The Bell Curve” by Atul Gawande online at the New Yorker’s website for some info).

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